The CoRonavIruS Health Impact Survey (CRISIS) – Adapted for Autism and Related Neurodevelopmental conditions (AFAR)

The CRISIS AFAR Survey aims to assess the specific needs and changes related to the Coronavirus/COVID-19 crisis in individuals with autism spectrum disorder (ASD) and related neurodevelopmental conditions across the lifespan. The survey includes a parent-report form for children and adolescents (3 to 21 years old), a self-report form for youth and adults (14 years and older), as well as a parent-report form for adults with autism or other developmental disabilities.

CRISIS AFAR maintains the general structure of the core CRISIS forms it was developed from (V0.3), while including a more extensive array of items focusing on services, adaptive key behaviors, associated symptoms relevant to autism and related conditions, and quality of life in youth and adults. To preserve feasibility, non-specific items were removed, and others adapted for optimal fit. A detailed summary of changes is available upon request submitted to Dr. Adriana Di Martino (Adriana.DiMartino@chidmind.org).

Primary Content Developers: Adriana Di Martino (coordinator)1, Louise Gallagher2, Stelios Georgiades3, Panagiota (Neny) Pervanidou4, Audrey Thurm5, Bethany Vibert1. The section entitled School and Services was based largely on questions selected from the CARING through COVID questionnaire developed by Shafali Jeste and colleagues at University of California, Los Angeles, and has been slightly adapted.

Primary Content Consultants: So Hyun (Sophy) Kim6, Meng-Chuan Lai7

Developers of the adult/youth self-report and the parent-report for adults with autism and related neurodevelopmental conditions CRISIS AFAR forms: Meng-Chuan Lai7, Ami Tint7, Yona Lunsky7, Patrick Jachyra7, Hsiang-Yuan Lin7, Stephanie Ameis7

Editing and Technical Support: Evdokia Anagnostou8, Lindsay Alexander1, Jacob Stroud1, Irene Droney1

  1. Child Mind Institute, New York, NY, USA
  2. School of Medicine & Trinity Translational Medicine Institute, Trinity College Dublin, Ireland.
  3. McMaster University, Hamilton, ON, Canada
  4. First Department of Pediatrics, National and Kapodistrian University of Athens, Athens, Greece
  5. National Institute of Mental Health, Bethesda, MD, USA
  6. Weill Cornell Medicine, New York, NY, USA
  7. Centre for Addiction and Mental Health and University of Toronto, Toronto, ON, Canada
  8. Holland Bloorview Kids Rehabilitation Hospital and University of Toronto, Toronto, ON, Canada

The CRISIS team encourages advanced notification of any media, scientific reports or publications of data that have been collected with the core CRISIS and the present adaptation (merikank@mail.nih.gov and Adriana.DiMartino@childmind.org, respectively) though this is not required. We also encourage voluntary data sharing for the purpose of psychometric studies. Please contact Dr. Di Martino at Adriana.DiMartino@chidmind.org if you would like to make de-identified data contributions for the CRISIS AFAR.

To use the CRISIS AFAR form, please see links below and on the Download page.

 Download the Survey in PDF or Word Format 

Download via GitHub

 Download Survey for REDCap

Translations:
Greek, Italian, Korean , Spanish

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